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sicklecellanemianews
8 小时
38 and counting: Thriving with sickle cell disease
Columnist Oluwatosin Adesoye reflects on her thriving life as she turns 38 (and counting) with sickle cell disease.
sicklecellanemianews
1 天
Enlargement of heart’s left chamber tied to worse disease severity
Enlargement of the heart’s left upper chamber in sickle cell patients is associated with worse disease severity, per a new ...
sicklecellanemianews
2 天
Oxbryta’s withdrawal is a setback in the fight against sickle cell disease
Wilson explains how Pfizer's decision to withdraw Oxbryta from global markets could affect the sickle cell community.
sicklecellanemianews
5 天
It’s time to reclaim false narratives about sickle cell disease
The U.K.'s Black History Month presents an opportunity for sickle cell patients to combat false narratives, columnist Mary ...
sicklecellanemianews
5 天
An essential truth about caregiving: It’s OK to take a break
Columnist Sylvia Amuta always told other caregivers that it's OK to take a break. But sometimes things are easier said than ...
sicklecellanemianews
8 天
Desferal, to prevent iron overload in SCD patients, acquired by Mitem
Mitem Pharma acquired from Novartis worldwide rights to Desferal, commonly used to lower excessive iron levels induced by ...
sicklecellanemianews
6 天
Access to food, transportation key for sickle cell children: Study
Preschool-aged children with sickle cell disease with limited access to healthy food and transportation are at higher risk ...
sicklecellanemianews
12 天
At times, stepping back from advocacy is the wise thing to do
Columnist Mary Shaniqua, returning from her post-wedding activities, has learned that stepping back from advocacy obligations ...
sicklecellanemianews
21 天
It’s time to reclaim false narratives about sickle cell disease
Here in the U.K., October is Black History Month, and this year’s theme is “reclaiming narratives.” I believe that theme is particularly apt for sickle cell patients. People with sickle cell disease ...
sicklecellanemianews
13 天
Stroke rate rising for adults, children with SCD in US: Study
The stroke rate among adults and children with sickle cell disease in the U.S. is rising, indicating a need for greater ...
sicklecellanemianews
15 天
Pfizer withdraws Oxbryta from global markets, cites safety concerns
Pfizer withdrew Oxbryta (voxelotor), a conditionally approved oral therapy for SCD, saying its benefits don't outweigh risks.
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